Framework to IMPROVE the integration of patient generated health data to facilitate value based healthcare


Today, a wealth of information and data on patients exists, but is scattered across different platforms and systems. This makes it very hard to use this data effectively to improve patient care.

The aim of IMPROVE is to develop an evidence-based, real-time framework capable of integrating information from patient reported outcome and experience measures (PROMs and PREMs) and patient preference information (PPI), including real-world data from m-health and e-health technologies such as wearable devices and mobile apps. By drawing on this Patient Generated Health Data (PGHD), the IMPROVE framework will deliver new insights into the real-life behaviour of, and challenges faced by, patients of all ages living with complex health problems.

The IMPROVE framework will be integrated into an online platform designed to facilitate the smart use of patient inputs and evidence in the development of integrated healthcare solutions.

The platform will be tested via 10 use cases covering 5 disease areas (ophthalmology, oncology, cardiovascular disease, chronic inflammation, and neurology) in different European countries to increase the impact of the project.

Ultimately, by placing the patient at the centre of the system, the IMPROVE platform should advance the use of information on patient preferences and experiences in treatment selection decisions and medical device design. The project also hopes its framework will facilitate the faster market entry of patient-centric, cost-effective integrated care solutions that are able to improve the healthcare delivery.


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Universities, research organisations, public bodies, non-profit groups
  • Agenzia Regionale Per La Salute Ed Il Sociale, Bari, Italy
  • Ethniko Kentro Erevnas Kai Technologikis Anaptyxis, Thermi Thessaloniki, Greece
  • Fachhochschule St. Polten GMBH, St Polten, Austria
  • Fundacio Hospital Universitari Vall D'Hebron - Institut De Recerca, Barcelona, Spain
  • Fundacio Institut D'Investigacio Biomedica De Bellvitge, Hospitalet De Llobregat, Spain
  • Heinrich-Heine-Universitaet Duesseldorf, Düsseldorf, Germany
  • Institut Za Ekonomska Raziskovanja, Ljubljana, Slovenia
  • Laegemiddelstyrelsen, Kobenhavn S, Denmark
  • Ortopedska Bolnisnica Valdoltra, Ankaran, Slovenia
  • Splosna Bolnisnica Celje, Celje, Slovenia
  • Stichting Het Nederlands Kanker Instituut-Antoni Van Leeuwenhoek Ziekenhuis, Amsterdam, Netherlands
  • Tilburg University- Universiteit Van Tilburg, Tilburg, Netherlands
  • Udg Alliance, Lausanne, Switzerland
  • Universidad Politecnica De Madrid, Madrid, Spain
  • Universiteit Utrecht, Utrecht, Netherlands
  • Univerzitetni Klinicni Center Ljubljana, Ljubljana, Slovenia
Small and medium-sized enterprises (SMEs) and mid-sized companies (<€500 m turnover)
  • Institutet For Fremtidsforskning Forening, Kobenhavn, Denmark
  • Iserundschmidt GMBH, Bonn, Germany
  • Multimed Engineers SRL, Parma, Italy
  • Predictby Research And Consulting S.L., Barcelona, Spain
Patient organisations
  • Fondazione Italiana Sclerosi Multipla - Fism Ets, Genoa, Italy
Private companies
  • Better Programska Oprema Doo, Ljubljana, Slovenia
IHI industry partners
  • Dedalus Italia S.P.A., Firenze, Italy
  • F. Hoffmann-La Roche AG, Basel, Switzerland
  • Medtronic Iberica SA, Madrid, Spain
  • Philips GMBH, Hamburg, Germany
  • Philips Medical Systems Nederland BV, Best, Netherlands

NameEU funding in €
Agenzia Regionale Per La Salute Ed Il Sociale71 375
Better Programska Oprema Doo370 938
Dedalus Italia S.P.A.1 327 515
Ethniko Kentro Erevnas Kai Technologikis Anaptyxis54 188
Fachhochschule St. Polten GMBH262 250
Fondazione Italiana Sclerosi Multipla - Fism Ets180 750
Fundacio Hospital Universitari Vall D'Hebron - Institut De Recerca222 819
Fundacio Institut D'Investigacio Biomedica De Bellvitge228 916
Heinrich-Heine-Universitaet Duesseldorf103 875
Institut Za Ekonomska Raziskovanja178 563
Institutet For Fremtidsforskning Forening190 750
Iserundschmidt GMBH227 625
Laegemiddelstyrelsen94 500
Medtronic Iberica SA612 440
Multimed Engineers SRL76 500
Ortopedska Bolnisnica Valdoltra63 563
Philips GMBH978 108
Philips Medical Systems Nederland BV3 021 288
Predictby Research And Consulting S.L.343 250
Splosna Bolnisnica Celje66 400
Stichting Het Nederlands Kanker Instituut-Antoni Van Leeuwenhoek Ziekenhuis662 000
Tilburg University- Universiteit Van Tilburg163 250
Universidad Politecnica De Madrid430 750
Universiteit Utrecht315 750
Univerzitetni Klinicni Center Ljubljana66 400
Total Cost10 313 763