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The new IHI project’s state-of-the-art platform will help to advance research by driving innovative, real-world data collection from patients with rare neuromuscular diseases.

The 3TR project successfully identified gene expression pathways that could distinguish between people whose lupus was active versus people whose lupus was close to remission.

By placing patients at the centre of the system, IMPROVE should advance the use of patient-generated data in treatment decisions and research.

The FACILITATE project developed a white paper setting out a framework on how best to return patient data from clinical trials. GSK and Sanofi are already piloting the framework.

The SISAQOL project has developed a set of tools to ensure that quality of life endpoints for clinical trials for cancer treatments are meaningful, standardised and comparable.

Project-COMFORT aims to make microsampling techniques, which collect minute amounts of blood and can be carried out at home, a standard part of healthcare.

Taking patient preferences into consideration when developing a therapy would seem common sense. Yet it is only relatively recently that consultation has become formalised. IMI’s...

Former IMI patient education project EUPATI is going global with the launch of a national platform in Japan, and the translation into Japanese of its toolbox. The move highlights...